hoorraayyy! the tube is out! we have had three bottles of apple juice and water starting with 40 mls and we have worked up to 70 mls and all has stayed down! so it all looks good ! Dr Muller is very optimistic and has given the go ahead to start with milk at 1800 - but only little amounts at a time - if that goes well we should be able to start solids tomorow!
Deqlan is looking GREAT today and has smiled the most we have seen him smile in the last month and even laughed with me pulling silly faces - the nurses and even Dr De Jager ( who was so sweet to come and visit us again) said he was looking great and returning to his normal self!
He was delighted to have Nanna & Meggie come to visit again and bring all their treats for Deqlan with! Nanna bought two beautiful stack rings and a piano which Deqlan LOVES!!! Meggie found three baby einstein puppets to entertain Deqlan with and a musical set which he has not put down! This beautiful boy LOVES music - just like his mamma, nanna and meggie
We heard that we might be allowed to go home tommorow night and then have Monday at home and start chemo on Tuesday - Thursday - so praying we will have some time at home again - i can count the nights we haev had at night the month of June on 1 hand.....\its a real treat to go home
Deqlan will get vincristine, cisplatin and mixtures to keep him hydrated and his kidneys protected from this round - we hear we will be on our normal room so we quite comfy with that idea Deqlan loves looking at the window at the cars
We are still so positive and optimistic that Deqlan is going to be healed and make a full recovery - even Dr De Jager is optmistic
We know Our Lord is listening to each and very single prayer , thank you for your continued prayers, love and support