It was wonderful to be at home with Deqlan for Sunday and Monday night - is really was- and he loved it just as much - as always, loved seeing the dogs and just being in his own home with know poking and proding and checking temperatures etc
We arrived at Little Company at 9 this morning , checked in and then went to have a new needle inserted into the porto cath - Deqlan didnt mind the needle at all - but was so scared of what was happening as he hates being held down - it was horrible and not something i think he will ever get used to - but luckily was over in a few minutes and nanna, meggie and i managed to calm him down
I had a lovely visit from Tracey today, one of my special post natal class friends and she was so kind to bring Deqlan a gorgeous elephant and some biscuits for us to enjoy - and we got a photo of her son, Luke to put into our prayer book!
Mark was not able to be with us today during the day as he has started a new job in Johannesburg but rushed to us afterwards - Deqlan tried to leap into his arms as soon as he saw Dad walk through the door.
We started the day with vincristine, then some kytril to avoid nausea, and then unto cisplatin which will continue through the night and tommorow morning - we then spend the rest of wed and thursday being rehydrated to avoid damage to the kidneys from the platinum
We had a visit from sister Felicitas again today - Bless her she always comes to see how we are and always tries to make Deqlan laugh.
Deqlan seems to have no side affects , just seems a little tired - but other then that he has had a great day full of laughs and smiles and new words ( we dont understand them yet) but he really had us all laughing and appreciating what an amazing little soul he is - he truly lights up my life and so many others each and every single second of the day - what a privilige it is to be his parents
We have counted 5 teeth trying to get through the gums at the moment so Deqlan is trying to get everything into his mouth - shame it looks so sore!
We met a family here today from Secunda - their 4 year old little girl, Charlise, was also diagnosed with neuroblastoma in April - it took them 6 months od doing tests and going from doctor to doctor to eventually find out - she is on her 5 round of chemo and her eye has also gone back to normal and she seems to be doing very well to - please pray for Charlise and her family to - its comforting to actually chat to other parents we are in the same boat as us
Please also pray for our friends in Texas. Keira's tumor has shrunk considerably and no more trace if cancer in her bones - praise Our Lord - surgery has now been put on the table - please pray for Keiras recovery and guidance for her parents and doctors.
Hope you are all well and will try my best to write again tommorow
sleep tight and please continue to pray for our soldier Deqlan
God Bless and keep you all safely