We are so sorry we havent been able to post a blog over the last few days - we have had quite a few problems with our lap top and signal in the hospital!
Its the first time that I have managed to get a moment to give you all the latest news , as Deqlan lies in Dadas arms on Fathers Day, both catching up on some much needed rest.
I only had 1 hours sleep last night - as i am not allowed to sleep in the icu ward with Deqlan - i have to "find a bed" each night we have been in icu - i was asleep for about an hour when the nurse came to wake me up saying Deqlan was crying - when i got back down here, he was sobbing and saying Mama - my heart just melted and we spent the rest of the early hours of this morning playng and eventually Deqlan went to sleep at 6am this morning - I have not had a chance to rest yet so hoping to catch a few hours tonight - but in the chair in his room - dont want to put him under anymore stress of him waking him and not seeing me
WE ARE GOING HOME TOMMOROW - MONDAY , 18 JUNE - I CAN NOT WAIT - I AM SO EXCITED!
We have a break of 1 night and then we have been given the go ahead to start with the first round of Chemo at Little Company of Mary on Tuesday, 19 June - we will be in the hospital for 1 night as this first round requires over 30 hours of treatment etc
I cant wait to go home and watch Deqlan crawl around and laugh at the sight of our dogs - enjoy morning live with Vuto and Leeann and most of all to sleep in our own beds! We are definitely starting to get cabin fever inside these four walls and Deqlan is unable to crawl on the floor - so very frustrated !
Dr De Jager, our oncologist paid us a visit today and gave us a list of the treatments we will be going through over the next 100 day - there are assessment periods during the 100 days to check on the progress of the treatment - WHICH I AM SO POSITIVE IS GOING TO WORK FIRST TIME -THESE CANCER CELLS ARE NOT GOING TO KNOW WHAT HAS HIT THEM
Deqlan has been drinking milk and keeping it down! the dosage increases as the feeds go on we are on 60 mls at the moment and we should be almost back to normal tommorow morning - and hopefully solid food slowly but surely from tommorow - poor Deqlan gulps each and every single drop and wants more ! shame, we will get there....
He is looking great today and has been since Friday afternoon - all the pipes are out , except for 1 drip running to administor the antibiotic - only 1 more dose left, then will be taken out tommorow morning - yipee!
I want to thank each and every single one of you for every sms, phone call, email, but most of all for your PRAYERS - I KNOW OUR LORD IS LISTENING - WE HAVE ALREADY SEEN HIS MIRACLE IN PROGRESS!
Deqlan , Mark and I gave each of you our biggest hugs and kisses - thank you , thank you , thank you - we are Blessed to have the amazing support structure we do in you all
Please keep the prayers going - we appreciate each and every single one and each one is a step closer in the direction of Deqlan being COMPLETELY HEALED! Our Lord is so great
Look after yourselves hope you had a lovely Fathers Day - I know Mark did as he was with his little boy and had such a lovely telephone call from Logan ...
All our Love and Gods Blessings to you all
Mark, Samm& Deqlan