Wednesday, November 25, 2009

OUR LADIES MAN

Our House is now officially ready for Christmas!
Our beautiful tree, Deqlan loves looking at the loves and pulling the bells off!

How grown up is Logan? Cant believe she is going to be 8 in less then two weeks!



All four of us together!



Nanna cuddling gorgeous Josh!



What a gorgeous photo i sneaked of Darryl and Josh...love is...



I know this photo isnt the best quality but Deqlan LOVED ABBY! He kept going up to her and touching her and loving her - he llooveeess Girls!



Nanna blowing bubbles for Abby and Nats - Abby loved them!









How cute is Abby???



Deqlan playing dominoes with the rice milk cartons!



The cutest mickey ever - Deqlan hated things on his head, now is putting them on himself! I have a happy birthday head band at home, he loves putting on now to


We had a lovely weekend, it wa great for the sun to come out , after a whole week of rain and grey skies, the sun was definitely welcome!


Mark through me a little birthday celebration on Saturday and because of all the rain, we landed up getting pizza and staying in doors! It was still lovely though and was awesome to spend time with Nats and Phil and Abby and Nix and Darryl and Josh - man, oh man are these kids beautiful, gorgeous, what precious gifts - was lovely to see you guys and thank you for my stunning presents!


Deqlan continues to have fantastic days with lots of positive changes



He has become a real ladies man, and loves hugging little girl babies and girls his own age- he has a 'girlfriend' in the road we live in called Zarina, she is to precious - also three, but a bit of a tomboy so doesnt mind when Deqlan hugs her tightly and pulls her around by her hand - not like some of the other kids that squirm away - she is a real tough cookie, Deqlans match to a T i would say! So precious to watch, 'THEY SAY' that kids on the spectrum are not interested in other kids, well my friends, Deqlan certainly is


New words :
NIGHT NIGHT
CHEWING
HI - WHEN MARK GETS HOME AT NIGHT AND DEQLAN GETS INTO THE CAR TO GO FOR HIS NIGHTLY DRIVE, HE LOOKS AT MARK AND SAYS HI! TO BEAUTIFUL
BELL - WE PUT OUR CHRISTMAS TREE UP AND DEQLAN LOVES TOUCHING THE BELLS , ACTUALLY PULLING THEM OFF THE TREE IS MORE LIKE IT
BABA FLY- FOR BUTTERFLY
RICECA OR CAKE - FOR RICE CAKE
HUG - so beautiful, when Deqlan hugs us , he says HUG



The countdown to starting school at Little Leaps has begun, 11 Jan 2010 - i cant believe it. In one way i am sad that i wont be with Deqlan every single second of the day, but in another way celebrating that he is going to go to school! That he is going to learn and thrive, that he is going to make friends, and learn new things and discover another world apart from our houses ! We will have a meeting with Ash in the next few days to get our game plan together and then we will watch Deqlan walk into his classroom for the very first time and i will be so proud the tears of joy and appreciation to Our Lord for healing Deqlan will just run down my face.




You know we went through that phase of leaving the shops with 3 different boxes of cereal each trip? Now its changed to Aero, the chocolate bar, but the mint one. Deqlan just wants to hold it and look at it for the bubbles on the wrapping, i was so concerned he would want to eat it and i would have to say no and that would be terrible, but its like he knows what he is not allowed now...shame..he even handed it to the lady at the till to ring up, he said "TA" and handed in to her with the biggest smile!



I saw a friend from church in Woolies yesterday and when i told Deqlan to say goodbye, he gave her his hand to kiss and then gave her a hug and send hug - i could see how touched she was by this - man oh man is Deqlan adorable!



Well friends, we are patiently, trustingly ( if there is such a word) waiting for the blood and urine results from Deqlans check up which we will recieve next Friday, we trust and believe will be normal and ask you to please continue praying with us for those great results



We also waiting for results on Deqlans liver functions, before we give next round of diflucan for the candida and also waiting to see what his imunity is like for measles, as he will be going to school next year and because there have been an increased number of cases in Gauteng, we need to be sure, i woudl hate to give another measles vaccination if we dont need to - measles vaccines have also been need to worsen leaky gut issues!



We also doing some amino acid profiling which will explain why it seems Deqlan doesnt have any protein, when his blood and urine tests are down, but thats actually all he eats! So a Prof At Potch University is doing a study for kids on the autism spectrum, to prove that there are issues with their amino acids - hopefully this will give us lots of answers and what we can supplement with to improve this - which in turn can inly improve things for Deqlans recovery from Autism i believe! We should get those results end of this year/beginning next year



Speaking of great results, Wills scans are stable!


Adrians MIBG scan also shows he continues to remain NED


Please continue to keep everyone in your prayers , special prayers at the moment for Reef, Elizabeth, Imogen, Erik, Christopher, Christo, Rene.


More thank you's for our CHOC Christmas drive:


I recieved yet another package yesterday afternoon, actually nearly a boot full of items from Jason! Thank you so very very much Jason for the 2 cases of water, the packets and packets of fizzers and packets and packets of suckers - i was totally blown away! Thank you also for coming to me to deliver and making sure they will still be in time for the parties! Thank you for being so enthusiastic to help us , you have been such a great help!

Have a great week everybody


God Bless, love
Mark Samm Deqlan Logan
BE STILL AND KNOW THAT I AM GOD

1 comment:

Lacey said...

I can't wait to put our tree up. We are doing a Disney tree this year because we are such Disney freaks. Yah!