HOLDING TIGHTLY ONTO HIS CROSS AND THE PLASTER ON HIS HAND WHERE THE DRIP WAS
JUST GOTTEN HOME AFTER THE SCAN- DEQLAN GLAD TO BE OUT OF HIS SHIRT
DEQLAN HOLDING HIS 'FRIENDS' ARM FOR COMFORT JUST BEFORE WE LEFT FOR THE SCAN
DEQLAN ENJOYING HIS SLIDE AND NEW BIKE - ARENT THE RAYS OF SUNSHINE JUST ON DEQLAN AMAZING? DEFINITELY SENT FROM ABOVE!
DEQLANS SHIRT SAYS - MEAN FIGHTER - TRY AND TAKE ME OUT! TAKE THAT NB!
I have now find some time to sit down and tell you about all the goings on of yesterday.
We started the day off by going to church and have an annointing and blessing for Deqlan done by Father Russell, who was so lovely and kind and comforting.
Deqlan,Nanna and I met Dadda at the hospital at 1130 - we started off with the sedation medicine and Deqlan through it all up - he was in a state because of this awful stuff - it is the worst taste you can imagine, i dont know how the expect kids to drink it never mind keep it down - thats one of the things on my 'what to event list ', event something that actually tastes ok so it can stay down long enough to work! Nanna and I where already so upset seeing Deqlan crying and throwing up we already wanted to come home.
Nanna calmed our soldier down and he eventually fell asleep - after a lot of discussion and back and forth between the sisters, scan department and doctor it was decided to put the drip up while he was sleeping and then give him dormican to keep him sleeping - it can have the opposite effect though and wake them up - i wasnt happy about this at all. Dadda and I convinced the sisters to try and put the drip into his scalp - best vein for Deqlan but none of them where willing to do this (this was at a different hospital we normally go to , so no one really knew us or Deqlan and this caused so much frustration) So i told the nurse she had 1 and only 1 go to get it in his hand - and she was excellent and got it in first time. Deqlan did wake up because it was sore, but Nanna got him back to sleep. We then convinced the x ray department to do the scan without the dormican, that Deqlan was so fast aslseep he would remain asleep for the scan - they where not happy with us challenging their decisions, but eventually went with us . Deqlan was a star and stayed asleep the entire 10 minutes of the scan.
He stayed sleeping for a further hour as we waited for the results. They then came out and asked Mark to go home to fetch the previous scans to compare - that made us very anxious. They also didnt want to remove the drip just yet in case they needed another scan - so a million things where running through our minds and yesterday was really not a great day for me , as Deqlans mom, Mark as his Dad and Nanna watching him go through all of this and then waiting and wondering. Our Faith was always there, and it will always be there, its the worry and wait that get to you.. another hour and a half past and eventually the results arrived.
The report says that the brain and all areas and bones look normal.The bones around the left eye are thickened , which they suspect is due to the erosion , chemotherapy and then remoulding of the bone - Thank Our Lord, I sat down on a bench outside the hospital and cried and cried and cried some more - i was more then relieved - i was so grateful and just kept saying thank You Lord
It was one of the toughest days of our journey and its not going to get easier - each scan date, each blood or urine test, each change you may or may not see in Deqlan is going to un settle us forever. We continue to put all our trust and faith in Our Lord and just ask him to help us deal with it and work through these days better. A very wise , amazing lady, Nanna, gave me a good talking to yesterday - i cant live each day in fear of what may happen cause i will miss the moments. She used a cross road as an example and you are either going to go this way or that way and no matter which way God sends you on he will be there - we just got to ask Him to be there with us! Mom,from the bottom of our hearts, we cant say thank you enough for all you and Dee have done and continue to do for us - i know that this journey is just as hard for you, and you continue to be with us every step of the way - you continue to pick us up on the days we cant carry on, you continue to make Deqlan laugh and smile even when your heart is breaking with worry - we love you more then we could every put into words, I thank God for my guardian angel in the form of you my Darling Mom and Nanna - we love you so very very very much and may God give you all the blessings you so richly pour on others.
A very wise, handsome man, Dadda, aka Mark also calmed me down and brought me back down to earth - i was on another planet for a few days, perhaps another galaxy, but i am back now, Thank you my love and Dadda for holding our little family together and days where it seems i cant and dont feel i am strong enough to - thank you for taking such good care of us and for being Deqlans hero - you truly are - we love you more each day and are so proud of you! We shall continue to get through this journey together.
We where so glad to be home - a had a huge migraine and Nanna developed one later - but the relief , the joy, the thanks we have for Our Lord is more then i could put into words
Thank you to you all for standing with us, your prayers, your support and your love for Deqlan and our family- we appreciate it more then you know and Deqlans army is proof that God answers prayers - ANYTHING YOU ASK FOR IN MY NAME!
Now to the other great news - Kate's scans an other results came back as NORMAL - normal is the best word in the cancer world! Kate and Karen and boys, we are overjoyed for you all and go an enjoy the celebrations this weekend! Thank Our Lord for Kates continued NED status!
More great news, Yolande from CHOC cancer counts are down to zero!!!!!!!! finally after many months of chemo and a hysterectomy, they are normal! She is busy with the second last round of chemo and we pray and have faith she has kicked the cancer for good!
I must wish Ivan a very Happy Birthday for Wednesday - please forgive us Iv , our minds where a millions miles away on Wednesday and i am so sorry we missed the actual day, but trust you had a great day and wish you many many more!
We are off to Mark and Candice's wedding tommorow - so to you guys , Congratulations in the mean time, i am sure the wedding is going to be very memorable and beautiful ! Enjoy each moment, it goes so quickly!
Thats all for now folks - go and have a stunning weekend and please remember to pray for Deqlan and all our friends fighting cancer so bravely
Please also pray for Little Cadens surgery to be a huge success!
God Bless and all our love and thanks
Mark, Samm & Deqlan
LORD WE BELIEVE, LORD WE RECIEVE, ALL THINGS ARE POSSIBLE, LORD WE BELIEVE!