still no news from the doctors...i continue to be patient and remember the words IN GODS TIME
our little soldier is officially walking EVERYWHERE! im still a little concerned ove the areas of tiled floor as he still falls now and then and we are trying to protect him from bumping hs beautiful head, especially his left eye area, as the bone is still soft and remoulding
tried to past the video of our soldiers brave and very proud walk around his room but the blog doesnt accept the type of programme we used!
Meggie went to make a very special delivery to CHOC this afternoon. Between Grandpa and Nanna, Megs and Conrad, Mark and myself, we lovingly helped with some Christmas presents for the upcoming CHOC party this Sunday. Meggy meet Yolandie to hand over and she was so grateful and thankful. Yolandie herself, is fighting Cancer of the uterus and just finished a chemo session, which didnt leave her feeling well at all. We ask for all your prayers for this amazing family and lady.
We are hoping to attend the Christmas party, weather depending - we hear that it is out in the open and we can all take picnic blankets and have our own little picnic as a family! We are all in the same boat with children with little or no immune systems, so we know no one would take the chance of coming if a family member is sick. So hoping to arrange that as an outing for our busy soldier!
please visit the following new sites ( links pasted on our blog to the left)
BAND OF PARENTS
We are parents of children diagnosed with a cancer called neuroblastoma who want to help further the research and drug development desperately needed to save more children. Neuroblastoma is an “orphan” cancer; pharmaceutical companies are not developing new treatments because there is not a large enough patient base to make development profitable. Funding from the government is similarly limited. Time is running out for many of our children -- money stands between them and a cure.As parents, we have banded together to increase public awareness about neuroblastoma and to raise funds for the development of novel therapies. We are working in partnership with a talented and dedicated team of doctors at Memorial Sloan-Kettering Cancer Center (MSKCC) who are fighting to save our children from this deadly disease.
LUNCH FOR LIFE
My name is Mark Dungan but, perhaps, I am better known as "Daddy" to a beautiful 6 year old little girl. Sydney, my daughter, was diagnosed with Stage IV Neuroblastoma in June of 2003. She continues her struggle but serves as a constant reminder of how strong and resilient our little children are. Although she has received over 8 rounds of high dose induction chemotherapy, multiple surgeries, a stem cell transplant, 12 rounds of radiation and years and years of painful immunotherapy and maintenance chemotherapy there is no guarantee that she will survive. Neuroblastoma is an extremely difficult cancer to beat and she, like thousands of others, fight this battle with little guarantee of a future.
It was her inspiration and others that led hundreds of families to unite to try and fund the cure. We started "Lunch for Life" in an effort to save our children and the thousands that will follow. The concept is simple. We are asking everyone in the world to give up lunch for one day and donate the money to research. All funds raised through "Lunch for Life" go directly to neuroblastoma. It is an easy price to pay and, if we can get enough of the world to take a stand against childhood cancer, thousands and thousands of lives will be saved.
Please help us change the world. It is just one lunch out of your life and it will be the very gift that provides thousands of children with just that -- Life! Please donate your lunch money to the Children's Neuroblastoma Cancer Foundation and help us eradicate this monster. Give up a lunch. Spread the word. We will save lives.
PLEASE DO WHATEVER YOU CAN TO HELP RAISE THE MUCH NEEDED FUNDS, EVEN IF ITS JUST PASSING THE INFORMATION ON - IT SO IMPORTANT THAT WE CONTINUE TO RAISE AWARENESS AND UNDERSTANDING AND FUNDS TO FIND A CURE FOR OUR CHILDREN!
Have a stunning evening
God Blessings and you all, please continue to pray for our friends fighting Nb and other cancers
Lots of love
Mark, Samm & Deqlan