well away we go - Thank you Lord the counts where up and we are all systems go - Deqlan has had a good day - had a long sleep this afternoon as was on top form when he woke up!
We made a new friend Reoun - he turned 1 in July so very close to Deqlans age. He has a form of leukimia and comes for chemo every 3 weeks for 1 week at a time! He is gorgeous! He came to say hi to Deqlan through the glass door and they both oooohhhed and aaahhhed at each other and smiled and placed their hands on each others through the glass - was so lovely to see - Deqlan hasnt had 'contact' of any kinds with children since 25 May so we think he really enjoyed it . I took some photos and hope to put up on the blog asap
We are currently on cisplatin till about 1500 tommorow afternoon and then we will get another 24 hours to rehydration to prevent damage to kidneys etc - so far all great !
Deqlan giving us lots of excerise - as you know he loves to be on the floor and pulling on everything but here we are a bit restricted so we have to try very hard to entertain - he was all over the bed tonight keeping even Dada busy - we have to watch every move so as to make sure he doesnt stand or make a movement to pull the porto cath needle out! So lots of Baby Einstein and Baby Genuis videos where watched today and lots of new games created by Nanna out of her Mary Poppins bag
My spirits are a lot higher today and I thank you all so much for your continued love , support , encouragement and so so very grateful for your prayers! You are all in the army fighting this war on neuroblastoma with our gorgeous Deqlan - as always please continue to pray for our friends in South Africa and all around the world
Id also like to thank Mark for the most stunning message left to Deqlan and I - we love you so so so so much and we are so proud of you !
God Bless sleep tight and have a great week
Sacred Heart of Jesus we place our trust in Thee, all for Thee Oh Lord Oh My Jesus All For Theee
All our Love
Mark, Samm & Deqlan
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2 comments:
Hi Samm, Mark & Deqlan,
I am so happy to hear that Deqlan's blood count improved enough to continue chemo. He is a very special boy.
Stephan and i were discussing the " Deqlan Bubbles of Hope & Balloons of bravery" and thought it was such a nice gesture for the children at Kalefong. Much to Hannah & my surprise, Stephan bought Hannah a little bubble making machine. Now every night when we are about to put Hannah down for the evening, we blow bubbles of hope in honour of your little soldier fighting this disease. For every bubble that goes in the air is a little prayer and blessing going up for Deqlan and your family. Hannah loves this so much, she laughs and gives us a look as if to say " Mom, Dad, Deqlan knows we are thinking of him. We just wanted you to know that u are all as a family a true inspiration to our little family.
What wonderful messages you all posted to each other on this blog sight, i was in tears reading about the love and support your family has for one another. Samm, your faith and courage for your little boy is a true inspiration to me, i admire you for your strength and your desire to be the perfect mother. You are by far the most giving, loving and kind person i have ever met. Its an absolute honour to know you and your family and to be called a friend.
I want you all to know that you are in our thoughts daily, we salute you Higgins family. We care for you all and know always that we are hear to help in any way. And always remember that when Deqlan is better, Hannah would love to meet this brave little soldier.
I will leave you with these words:
" There's never a teardrop that God does not see
He knows when a sparrow falls from a tree
There's never a moment when God doesn't care
Never a time when He won't hear your prayers!"
Samm, always know that every tear that falls form your eyes and every prayer you say goes straight to our loving Fathers ears. He wipes your tears away. Although things have been tough for you and Mark, you have made it very far. Deqlan knows he is loved so very much, not only by u, but by anyone reading this blog sight.
Thank you for always keeping us updated! God bless you in abundance.
We salute you!
Love
Claire, Stephan & Hannah
Dear family,
I am back at work and delighted to be able to catch up on your blog. I have been thinking of you guys so very much the last two weeks. All I can say is, keep the faith. I understand more now than ever before, what fears and worries one has with that awful "C" word - but I also know that a strong heart and faith in God, is the way to go. I know it is not easy, because we are only human and our minds want to go places that they should not. But I learnt (and continue to do so) - that we must take those thoughts captive and destroy them. Our lives are lived according to the thoughts we feed them. They grow on that. So just continue to have beautiful, positive, thankful and happy thoughts for you and your precious precious child and God will honour you. I will not be able to meet you at LCM Oncology, as I will have the radiation at Meulmed instead. But as soon as your little soldier is up to it, I'm going to meet him and squeeze him and hug him. Take good care and lots and lots of love to you all.
From Aunty Wendy (a huge Deqlan fan !!)
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