Monday, August 13, 2007

Monday, the 13th of August 2007

Hi All

Hope you are all well and had a great weekend?

We had another weekend of cleaning and sorting out! We are getting things ready to give to CHOC - they are opening a new CHOC house in Pretoria and we have decided to donate our tumble dryer and other odds and ends to them in efforts to help them help all the families with children with cancer. I have now added their link onto our website to.

We continue to clean and disinfect and wipe down and sweep and mop and dust in effort to keep Deqlans immune system as strong as we possibly can.

We celebrated him being 11 months on Saturday the 11th! Cant believe that we have 1 month to go to him turning 1!!!!!!!!!

Deqlan is crawling faster, pulling himself up quicker and trying to stand all by himself! We have to have eyes in the back of our heads as he is so quick and we are so worried he falls and bumps his head! I know its part of the learning process , but if we can prevent it and try and teach him, that will be preferable! He is also bruising very very easily at the moment, we think he platelets are way way way down , a Dr Dejager advised they would be after this round of chemo. Nanna still continues to give the Neupogen injections to try and help his bone marrow recover.

He seems to be a little pale and his eyes more red then normal , but all to do with his blood & platelet levels....

His appetite changes constantly - but he seems to be enjoying our food more - as soon as he see's his bowl and his spoon his mouth automatically closes, but if he see's us eating he will open his mouth to signal ' im hungry feed me!!!' as long as he is eating i dont mind! we take great delight in watching him taste things for the first time! 1 thing is for sure , he doesnt like pronutro!!!

Have posted same of the latest photos for you all to enjoy!

Please continue to pray for our gorgeous boy , that he remains strong and healthy and that the tumor continues to shrink and disapear and pull away from the blood vessels and that Deqlan recieves total and permanent healing from Our Gracious Lord,.

EVERYTHING IS POSSIBLE TO THOSE WHO BELIEVE - MARK 9:23

Please also continue to pray for all of our friends in the battle with neuroblastoma and other cancers, Keira, Kate, Connor, Madelyn, Charli, Charlise, Miluska, Koketso, Yolanda, Ilse, JP , Bennie, Sarmone, Reoun, Hanco, Nthabiseng and all the other brave warriors in the world. We salute you! God will continnue to guide and protect you all. May he also continue to have his hands on your families and lead them to making the correct decisions and to always feel your love, peace and comfort Dear Lord.


God bless you all, lots of love
Mark, Samm & Deqlan

4 comments:

Charli Ann said...

cute picture of Deqlan in the tub with his animals!!

I can remember it like it was yesterday, trying to fight with Charli to eat after we started chemo. She has just started eating really well for us in the past two weeks or so. Thank God.

Thank you for the contined support and prayers. We will do the same.

Karen said...

Thanks for the gorgeous pics Samm! He really just gets cuter by the day. We continue to pray for his total healing - prayers for Deqlan are a part of our boys evening routine already. We will also continue to pray for all his friends and their families.

Take care of yourselves.

Love and blessings,
The Fishers xxx

Anonymous said...

Dear Mark, Samm and Deqlan,

We would like to share this beautiful thought with you guys and all of your friends and family who are hoping and praying for you and little Deqlan:-)...Know that you are in our thoughts each and every day..

" AS LONG AS WE HAVE MEMORIES,
YESTERDAY REMAINS,
AS LONG AS WE HAVE HOPE,
TOMORROW AWAITS,
AS LONG AS WE HAVE FRIENDSHIP,
EACH DAY IS NEVER A WASTE…"

Love and blessings
Grant and Coreen

Charli Ann said...

hi there! I just wanted to let you know that I got the nicest note from Meghan...which must be a sister to one of you! She seems so nice and so thoughtful!

I think it is great that our family and friends follow the stories of other childnren that we hold near and dear to our hearts.

Sending lots of prayers from Nebraska!