Our Darling Deqlan,
Hooray you are 26 months old today - 2 years and 2 months! What a big boy you are growing up to be, one that is full of love, and laughter, and joy and delight, courage and determination , and a spirit more beautiful and delicate , you will never find . Our hearts continue to overflow with absolute love and adoration for you, we are so unbelievably proud of you our sugar pie and pray Our Lord and Savior continues to shower His Blessings and love upon you and continues to keep you ned forever and ever. We love you with our all, you are our everything, Dadda and Mama
I got an email reply from a doctor in the usa yesterday saying that they dont use the NSE test in neuroblastoma patients, so my heart is put more at ease, again hearing that it is not such a great marker to look at.
More rain! And it looks like its going to be even worse tommorow - when will we see the sun again? We had a glimpse of it yesterday when we went to say hello to Sophie and Deqlan took full advantage of running around her beautiful garden while no rain was pouring down ! Thank you Sophie for the cutest gifts you gave to Deqlan, which he is still playing with and enjoying today, you are so thoughtful to always think of Deqlan. Thank you to you and Ivan for my stunning birthday card and gift, you spoil rotten, thank you so very much !
We also went past Kevin and Louise last night, they have just returned from their trip to New Zealand, which they continue to rave about, they had a great time except for a case of bed bugs in the last hotel they stayed in , shame Louise, hope you recover soon! Thank you for our stunning gifts - i think my husband is the biggest All Black rugby supporter i know, so you can imagine his elation of his gift which was a beautiful adidas all black jacket - to stunning, i have already been told to keep my hands off. Thank you to guys for my stunning top, with authentic tribal designs, very cool thank you! Deqlan was also grateful for the outing as we have been inside for many days now - he enjoyed playing with Kevin and Louises wooden cats which are bigger then him!
We going to start packing tonight for our little getaway - not sure what i am packing - winter or summer at the moment and Mark is not letting up on any clues , not even the direction we are heading in, except we leave at 10am on Thursday Morning and will be back Saturday afternoon....any guesses? Let you all know soon as I can!
I am already being spoilt rotten and in this family Birthdays seem to last for a week at least..i am being spoiled by my darling mom who is sending me to the hairdresser tomorow, thank you in advance Mom for all the spoiling you continue to shower down upon me!
Thanks to Bron to, who found Mercury Rising for me, hooray, thanks so much Bron cant wait to watch it!
Well, i think thats all the news for now, have a super Tuesday and thank you for your continued prayers , love and support for Deqlan and all our friends around the world. Please remember to support any way you can to help us find the cure!
God Bless, all our love
Mark, Samm, Deqlan
BE STILL AND KNOW THAT I AM GOD