Thursday, February 28, 2008

Hello Everyone

Hope you are all well and happy and healthy?

Deqlan not being eating so well the last 2 days and been a bit fussier then normal - but think his back molars could be worrying him as he put everything he can possibly fit at the back of his mouth there...he had a good breakfast of toast and peanut butter this morning, maybe he is just tired of his cereal....being desperately trying to get more fruit into him, but he only does bananas in yoghurt! Nanna and I have come up with a couple of ideas and we are going to try and see if our soldier enjoys any of them - one i am very excited to try is a smoothie - with fruit and yoghurt - holding thumbs!

We took Deqlan for a speech/play therapy evaluation yesterday and i was so glad we did - what AMAZING therapists that have already given me so many ideas to stimulate our soldier. Although Deqlan is saying Mama and Baba and a lot of different sounds, he needs a bit of encouragement to start learning new words and to start 'moving' around in more directions and climbing etc. They believe that the time Deqlan was in hospital recovering from his 3 surgeries and the time spent in hospital for chemo, was the time that these elements develop. So we are going to help stimulate Deqlan more in these areas to see if we can help his speech a long a little - the therapy is more a learn through play environment, and the therapists will be teaching us techniques to continue with him at home. We are going to start off going every Tuesday for 1 hour and then we will see how Deqlan progresses from there.

The physio therapist recomended getting Deqlan climbing on a jungle gym and jumping on a trampoline - will have to get used to this idea as i cant imagine him hurting himself - but he has got to learn some time and if its going to help then lets give it a go!

Megs went for her 6 week check up yesterday and all great and she immediately got in the car and drove ! No big red alarm bells on the blood and clotting tests that were done, except to say Megs had a very bad infection and that couldve caused the problems.

Keaton went for his 6 week check up today and Dr very happy with him - his excema is still worrying him but Megs got a cortisone cream to try and help - lets hold thumbs! He now weighs 3.82kg and also seems to be quite a tall baby. He also had his hearing test again and all perfect, no more water on the ear drum.

Baby Caden also doing really well, it was his 1 week Birthday yesterday! Hang in there little one, you doing such a great job - you are already so brave and tough!

On a sad note, Charlise, the 4 year old little girl from Secunda with Neuroblastoma, has relapsed - and this time is worse then before ...she starts radiation next week. She was supposed to go back to school in March. Please, please pray an extra special prayer for this beautiful little fighter, that the radiation works - please pray for strength and guidance for her parents - they also have a tiny little baby of 3 weeks. Please Dear Lord Jesus, have mercy on Charlise and work your miracles in her.

Other NB warriors desperately needing prayers and hope are Isla, Austin, Katie & Tyler and all our other friends fighting cancer.

Prayer is the womb of Faith
God Bless and all our love
Mark, Samm & Deqlan
SACRED HEART OF JESUS WE PLACE OUR TRUST IN THEE ALL FOR THEE OH LORD, OH MY JESUS ALL FOR THEE

7 comments:

Anonymous said...

Hi Samm,

finally got a moment to catch up on all your news! we are thrilled with Deqlan's results, thank God for the good news.

Deqlan is always in our prayers.

love
Jelenka

Anonymous said...

Hi Sam,Mark ,Deqlan andBev and family ,pleased to hear Deqllan is doing so well ,will continue to pray that his appetite returns and he enjoys his new smoothie.
Also praying for meggie baby excema will improve.
Love and prayers Ruth xxx

Anonymous said...

So glad Deqlan is doing good and praying his appetite comes back. Hugs and prayers. Carolyn Wing/Angel_Wings grandma to Laura Stage IV neuroblastoma carepage LauraVDB carolyn_wing@yahoo.com

Will's Dad said...

Great news on the follow up tests. Hoping Deqlan is feeling better and eating again soon

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