Tuesday, February 2, 2010

Naughty Noo Noo



For those of you not familiar with the Teletubbies, this is the Naughty Noo Noo, a much loved vacuum cleaner who cleans up after the tubbies after the eat their tubby toast or drink their tubby custard!


We were so surprised when Deqlan started saying the "Naughty Noo Noo" after Dada had only told him once. Its so beautiful to hear!


Deqlan now has his own naughty noo noo in the form of our vacuum cleaner, which he has always loved, but can now relate to ! So he carries our naughty noo noo around, proudly telling us his new best friends name when we ask!


Deqlan continues to LOVE school! He even woke up on Sunday morning saying 'LEAPS' and dragged Dada and I to the car, yes, still in our pjs, to go to his beloved Little Leaps. It was a challenge to explain that today was actually Sunday and school would only open on Monday again, shame...but wow, we couldnt have asked for this new phase in his path to go any better. I still have to at times bribe him to come home, by telling him we going to swim, he will say 'SWIM' and then take my hand to the gate and say 'GO'


Ash continues to be very pleased with all the activities Deqlan gets through, today he breezed through colour sorting! Go Deqlan!!


The other boys at the school have already crept into my heart - some so lovingly wave hello and goodbye , some take me by the hand, each and every single time to go and jump on the trampoline with them. Some boys look at me now as though i am a familiar face and i do fit into the scene somehow.


Deqlan also loves the other ladies there, Candice , who is the older kids teacher ( 5-7 year old boys) and Florie and Caroline who help the boys clean up, wash faces, even go with them for swimming lessons - Deqlan voluntarily gives them a kiss goodbye without me asking him to!


Tommorow, we are hoping for Deqlans first swimming lesson, weather playing along, fingers crossed! I hope Deqlan loves it as much as he does here and not get upset like he does with the water play at school - perhaps its to busy and overstimulating for him at school?


We have started with a whole lot more supplements to help our precious boy - they now look something like this

MORNING RICE MILK - CALCIUM AND MAGNESIUM

BREAKFAST - BE IT EGGS OR CEREAL, DHA (OMEGA 3)

MORNING JUICE - VITAMIN C, MULTIVITAMIN, ZINPLEX

DINNER TIME RICE MILK/JUICE - PROBIOTIC AND DIGESTIVE ENZYMES

AND A LITTLE DOSE OF DIFLUCAN FOR CANDIDA TO FINISH IT OFF WITH - JUST FOR THE NEXT TWO WEEKS


Candida seems to have peeked its head out again - not as badly as before - but Deqlan seems a little more frustrated at times and very 'giddy' at bedtime! Another flag is that he is hitting himself in the face, although since starting diflucan, that has stopped - i hear the candida can make your head feel fuzzy so that could maybe be the feeling Deqlan cant tell us about so tries to hit it away?


Deqlans pronunciation on certain words have changed - some for the better, much clearer - others, even the accent has changed! 'LG - LIFES GOOD' has never been clearer, but 'HUGS' have changed to 'GUGS' - Deqlan loves his GUGS and the harder we squeeze him the better and we will then say 'AGAIN. AGAIN' TO CUTE FOR WORDS
Tims memorial service was very very sad and moving, it was inspiring to see how many lives he touched, please continue the prayers for his mom and brothers and chrisma, and all his family and friends who miss him deeply
Another prayer request for my Grandpa who went for a normal check up , but not normal results back - his PSA level is 34 and should be 5 - this is a marker for prostate cancer. Please please pray that the biopsy he is to have done on 23 Feb reveals no cancer cells .
Please continue the prayers for the amazing Erik www.caringbridge.org/visit/erikludwinski


Have a great week everyone, God Bless and love
Mark Samm Deqlan Logan and Naughty Noo Noo

1 comment:

Anonymous said...

Dear Sam,Mark ,and Deqlan ,Derck and Bev,
Thinking and praying for you all.
Trust in the lord with all your heart and lean not on your own understanding in all your ways acknowledge Him and He will make all your ways straight.
LOve Ruth xxx