Friday, January 16, 2009

Celebrating 1 year NED!!!!











a prouder dad there couldnt be!
Deqlans NED breakfast of NED chocolate cupcakes
Conrad and Deqlan enjoying playing rough!

OUR FAMILY OF NED F.R.O.G'S FULLY RELIANT ON GOD
OUR BEAUTIFUL NED SOLDIER
ME AND SMILEY BOY! HAPPY 1ST BIRTHDAY KEATON BEATON!

OUR BLESSINGS FROM GOD WEARING GREEN AS IS THE TRADITION, THE COLOUR OF HEALING AND HOPE AND NEW STARTS
THE PROUDEST MOM AND DAD HOLDING 1 YEAR OLD KEATON!
WHATS ON YOUR HEAD NANNA?
THE NED CAKE CONRAD AND MEGGIE MADE FOR DEQLAN - LOOK AT THE CARS, DEQLAN TOUCHED EACH ONE AND SAID CAR!!! HE HASNT SAID CAR FOR WEEKS! WHAT A WONDERFUL DAY!

DEQLANS NED CANDLE, NANNA SAYS EACH YEAR WE ARE GOING TO MARK THE YEARS OFF AND COUNT UP TO 100 YEARS OF BEING NED!
THANKS SO MUCH MEGGIE CONRAD AND KEATON FOR DEQLANS NED CAKE WHICH DEQLAN LOVES!

Our Darling Deqlan
TODAY 16 JAN 2009 MARKS 1 YEAR THAT YOU HAVE HAD NO EVIDENCE OF DISEASE! It is a day that i will forever more gone down on my knees for and thank Our Lord for the healing and miracles He has performed in you. It will always be one of the most special days for our family as you celebrate it together with Keatons 1st Birthday today. I sit looking at the two of you eating your cake and playing together with your trains and running ( keaton trying to run after you) after Nanna pulling her famous spinners, and i am forced to take a huge breath and so thank you God for the most spectacular day, the most amazing gifts you have given us in the form of you our beautiful Deqlan and Keaton our gorgeous smiley boy.

I remember getting a phone call from Meggie round 230 am on 16 Jan 2008 saying,' just relax Sam nothing is wrong, but my placenta has ruptured and you are going to be an aunty today' WHAT!!! I MUST BE DREAMING, Meggie wasnt due for another month - wow this was going to be a massive day , as we were so anxiously awaiting your bone marrow aspiration results. Ok , I thought, this is the way that God wants this day to go and day we will never ever forget. It will be engraved in my memory always. I remember Dr Jacobs calling me and saying THE BONE MARROW IS CLEAR CLEAR CLEAR! I burst out crying and fell to my knees in front of our crucifix at home and just said THANK YOU LORD, THANK YOU LORD, THANK YOU LORD over and over again - this was the final test to confirm that you had NO EVIDENCE OF DISEASE.


The past year has been one of absolute thanks to Our Lord for all He has done for you and for us :

I continue to ask You Lord, to have mercy on Deqlan and on us. Please continue to keep him totally and permanently free from cancer forever and ever and ever. Please bless . protect, heal, keep clear EVERY SINGLE BLOOD CELL, EVERY SINGLE ARTERY , EVRY SINGLE MUSCLE AND ORGAN, EVERY BONE & BONE MARROW, EVERY INCH OF SKIN AND HAIR ON YOUR BODY. We know it is Your Will Dear Lord and we pray that Your Will is to keep Our Deqlan NED Forever and EVER AND EVER and for us as his parents, family and friends to have the honor and privilige and gift of watching him grow up, learn how to talk, going to school, going to church, having children and grandchildren of his own one day! We ask for Your Holy Spirit to continue flowing through every part of Deqlans body keeping him healthy and strong and protected from all harm. We give You all the thanks and glory and praise Dear Lord FOR YOU HAVE HEALED DEQLAN AND BY YOUR SONS STRIPES HE HAS BEEN HEALED. Thank you for a year of fantastic health, thank you for a year of lessons, thank you for the year of direction and lighting our paths and giving us the shoes to continue walking this journey. Thank you for evrey single person who still follows Deqlans journey of healing , who still pray for him and for our family and all the other people we request prayers for. We ask that You please heal and guide our friends and their families that are fighting cancer and please heal them to. Please continue hearing our prayers and answering them . Please continue giving us the shoes for this journey, please continue healing Deqlan and help us to pull him through the window and off the autism spectrum. Please let us celebrate Deqlan being NED for another 100 years and may he share Your light and love and miracles of healing with all those people in his life - all the glory, thanks, honor and love is Yours Dear Lord!

My heart breaks every time i see a new post with a new angels name, my heart breaks every time i read about how our friends continue to battle against this beast - my heart breaks to know that we could be doing more about this - please please please support anyway you know how or can WE HAVE TO FIND THE CURE


Deqlan, we are so incredibly proud of you - you are the light and love of our lives, you are the reason we will leave no stone unturned to do whatever it takes to make sure you are looked after the best way we know how. You are so unique, we are so blessed that you are our son and we couldnt love you more. You continue to be so brave and so courageous - you continue to live life to its fullest each day and I continue to learn so much from you! Never ever loose your fighting spirit, never ever loose your lust for life, never loose your uniqueness, stay the most beautiful loving gift you are , WE LOVE WITH ALL OUR HEARTS, SOULS, MINDS, YOU ARE OUR EVERYTHING AND WE THANK GOD EACH DAY FOR YOU OURU BEAUTIFUL BEAUTIFUL SOLDIER, DEQLAN ROSS HIGGINS

Heres to another year of being NED and to the next 100 years after that! Heres to the cure for neuroblastoma and all cancers, heres to be survivors and heres to all our friends around the world and to the angels in Your loving arms Lord that will never be forgotten and to their families who we continue to pray for each day.

We love you beautiful Deqlan, congratulations on being 1 year NO EVIDENCE OF DISEASE!

Thank you Lord, we love you beautiful boy

Mama and Dad & Logan
REJOICE IN THE LORD ALWAYS AND AGAIN I SAY REJOICE!

10 comments:

Caden Paul said...

Congrats congrats congrats! We are so happy for you, and for the wonderful year you've had, completely NED!

All our Love
Elriza, Wes & Caden

Anonymous said...

Congrats guys, and praise the Lord!!!!! Love and miss you always

Don, Sam, Mia and Liam xxxx

Ferreira Family said...

Hi Samm,

Congrats!! & Rejoice, Rejoice, Rejoice!!

There is a message on our blog for Deqlan!

See you tomorrow...

Love
Claire

Anonymous said...

Dear Sam,Mark,Deqlan,bev,and family,
Congratulations that Deqlan has remained Ned ,praise be to be God our healer.
God Bless love Ruth xxx

heidi james & hannah said...

What a wonderful celebration! 1 year of NED and we all look forward to the next 100 years.
All our love xxx

Conrad, Megan and Our Precious Keaton said...

My Darling Deqlan, Meggie does not have the words to describe her deep and intence love for you! Praise the Lord that You have been NED for a year! And what a magical year it has been! I will always remember your mommy's face when she told me you were NED (even though I was as high as a kite after just having your cousin - more about that when your a bit older) SHe was the proudest Mommy ever! But you know what Deqlan - Meggie always knew deep, deep, deep down in her heart that you would be just fine - how did Meggie know this? Because Meggie knew God had big plans for you and boy was I right! YOU have shown the world that Miracles do happen, YOU have shown the world that with HOPE, LOVE and FAITH anything is possible, YOU have shown the world not to take one second for granted and YOU have shown ME that life is for LIVING, for grabing each minute of every day and Thanking our Lord for all the blessings he continues to bestow upon us! We love you deeply! Conrad, Meggie and Keaton

Loren Stow said...

Congratulations! What a brave journey you walked and still walk every day! You are an inspiration to us - a true example of what it means to have Faith, Love and Perseverance!
Love,
Loren, Darryl & Malakai!

Nanna and Grandpa said...

OUR PRECIOUS AND TREASURED DEQLAN ROSS,

Today, as we CELEBRATE YOUR FIRST NED ANNIVERSARY, we are again reminded of the power of God's modern-day miracles in action, and we are again on our knees in prayer and thanksgiving to Him for all His great mercy, love, compassion, guidance, love, protection He has given you and to us as your family.

You are to God and to us, a courageous little soul, warrior and a true hero, one who continues to walk the road God has paved for you, with dignity, with innocence and trust, with faith and hope.

Your mommy has written, in her usual, standard style of extraordinary expressive ability, a beautiful tribute to You in honour of this your special 1st NED anniversary day. It is without doubt, due to the extreme dedication, heartfelt and continuous prayers, unconditional love, unshakable faith and trust and hope in God and all His promises, that your loving Mommy and Daddy have ensured your NED status. With God as "Captain" at helm of your ship, you are all assured that He will FOREVER protect, light, rule, guide and guard you all the days of your life.


Exactly one year ago today, waiting for Keaton to be born, your MOmmy and I gave each other a truimphant smile when we heard that you could be officially declared NED ! We were on our knees in praise and thanksgiving to God for answering our prayers and that our prayers were exactly His will manifested.

In the greatest faith, hope and trust in God, Nanna would like to suggest on this special day, that we add another NED MILESTONE and target. With continuous, earnest faith-filled prayer, concerted effort and loving and willing labour, in due time, our prayer is to pull you back "through the window" and "off the ASD spectrum". Then we will be able to celebrate NED - NO EVIDENCE OF THE DISORDER !!!! Imagine the power of praising God in such a double celebration of NED x 2 (No Evidence of Disease and No Evidence of Disorder) !

You continue to be a beautiful, powerful and most loving inspiration to us every day of our lives together. No matter the challenge presented to you, with God's help, your beautifully innocent trust, faith and hope in Him, you embrace it (with Mommy and Daddy's extraordinary courage,faith, hope and trust of their own of course) with bravery, dignity, strength, and a determination which will ensure glorious victory every time.

Like Mommy and Daddy, we pledge our humility, acknowledgement, praise and thanks to God, Jesus our Healing Saviour and the Holy Spirit and will continue to do so for all eternity. To the Blessed Holy Trinity be ALL the glory.

In our own faith also, we have reason to declare NED, as we will “Never Ever Doubt” how much God loves us, wants the best for us, knows the plans He has for us and that HE will ALWAYS walk beside you and our family, all the days of our lives.

Once again we remind you of the meaning of your name. As a “little man full of prayer”, we are certain God has a VERY SPECIAL PLAN AND PURPOSE FOR YOU, DARLING DEQLAN. You are a great teacher, a faith-builder, a trust-certifier, a courageous warrior and a determined, passionate soldier for the Lord.

You have been decorated again today with another "medal" for your ‘THE WHEEL OF FAITH” originally symbolically presented to you one year ago. We suggested that this wheel will symbolically guide and drive you in your journey of life. With Jesus at the top and centre of the wheel, may we always remember that He also suffered on the cross to save us, so He truly understands anguish, pain and suffering. You will remember that the ten points on the wheel depict:

COURAGE - FAITH - TRUST - STRENGTH - LOVE - HOPE
HUMILITY - ACCEPTANCE - PATIENCE - CHARITY

You are a blessed, beloved and special child of God. We love you so very much. Thank you for the blessing you are in our lives, thank you for all the lessons you have taught us and we thank you for all the joy, love, happiness and every smile you have brought us. We are truly blessed to have you in our lives. Our continued prayer is that God, His Healing Son and Saviour, Jesus and the Holy Spirit continue to bless you in every way and on every level and that your NED status remains all the days of your life.
With all our love,
Nanna & Grandpa

Gina said...

Praise the Lord and congratulations on 1 year NED. I just wanted to say thank you for all of your encouragement. Its so wonderful to have other warrior parents praying for our warrior half way around the world. I pray Carter and Deqlan would be NED for 100 years too!! Hope you had a wonderful day celebrating.
Gina (Carter Ryan's mom)

rhenda Elsayed said...

Congrats Deqlan! forever and always NED. You are our insperation and a perfect example of a hero.God bless and keep you and your wonderful family healthy and strong...praying that Ali's path will follow yours and he too will soon be NED.
love as always,
rhenda,ali&family