How are you all doing? All going well on this side with our beautiful warrior Deqlan
Go and check out this link :
Its of Grace's Mom speaking to Tom Cruise and Katie Holmes about her daughter who was diagnosed with Neuroblastoma last year - she actually got there attention and they listened to her and even got the details of her websit - lets hope and pray something comes of this
I take my hat off to you Grace's Mom, for having the guts and determination to do this and whatever else necessary to try and save Grace and our children
Deqlans prayer army - we need to ask you to please continue praying for all our friends, but please say extra special prayers for the following warriors
Charlize - relapsed nb
Benny - relapse
Sarmone - battling with leukimia
Ruan - battling with leukimia needing a bone marrow transplant
Gabriella - http://www.caringbridge.org/visit/gabriellarocco
Emily - http://www.caringbridge.org/fl/emilyadamson/
And a new friend I have just learnt of this morning , they have just recently discovered the nb and surgery to remove what the could of the primary tumor, his name is Carter and he is just 11 months old
Another friend we have just started to know is Connor who is NED , but suffers from a very rare disorder opsoclonus mycolonus syndrome - this affests his eye and his muscles and his speech
Congrats to Claire and Stephan and the confirmation that there little expected bundle of joy due on Deqlans Birthday, is a boy! Hannah is going to be a very good big sister!
Thank you to Kathy and Vicky for a huge bag full of pjs! Thank you so much ladies for your effort and thoughtfulness in choosing the beautiful pjamas - i love the pink camo ones - what a good choice! You to , are always there for us, and always support us in our projects to help others - thank you so very very very much for always being there for us and for your amazing contribution to snug as a bug - May God continue to bless you both as you bless others!
Speaking of camo, i had to mention a very special moment - One of Karens ( a very dear and special friend) sons, Dylan said something so beautiful on their recent holiday - ' We were in the Lowveld for a break last week. I had given Dylan his camo shorts to wear and after he had dresses I sent him to put on some shoes. He came back with Camo sandles on too and said to me – “I’m dressing for Deqlan today”. Thought it was so sweet.' thank you so much Dylan for being such an important part of Deqlans army - i hear that you and your brother Jordan continue to pray for Deqlan - you boys are amazing and i cant wait for you to meet Deqlan one day!
I came across a few sayings this week which i would love to share with you all
GOD MAKES US PERFECT AND DOESNT CHOOSE THE ABLE , HE ENABLES THE CHOSEN
FORGET A PERFECT ANYTHING. THERE IS A CRACK IN EVERYTHING, THATS HOW THE LIGHT GETS IN! ( FROM NANNA)
'Never borrow from the future. If you worry about what may happen tomorrow and it doesn't happen, you have worried in vain. Even if it does happen, you have to worry twice.'
Separate worries from concerns . If a situation is a concern, find out what God would have you do and let go of the anxiety . If you can't do anything about a situation, forget it.
So true i thought!
Deqlan had a great speech therapy session yesterday - we didnt go to occupational therapy as Anri Louise had flu and didnt want to make Deqlan sick! Deqlan was a lot more chilled and willing to co operate with Esedra - he even took Nanna down the hall into the room he wanted to play in, and normally its the opposite - he runs out the hall to get outside! So we where all very chuffed with his progess yesterday. We have decided to make the speech and ot sessions shorter as not to traumatise Deqlan to much - if he gets to upset and cries and doesnt want to actually be there we are not going to get much achieved , except a very angry and heartsore Deqlan - so we are going to see how that goes from next week
Have a great day and God Bless
all our love
Mark, Samm & Deqlan
p.s- just a little reminder that we will be collecting for snug as a bug until end of May!