Happy Birthday Shaz

To a very very special friend and 'sister', Shaz

Happy Happy Birthday my friend and many many more!

I hope you have an unforgetable Birthday and that it brings you nothing but the best!

Thank you for always being there for us and especially Deqlan

I am going to miss you know SO SO SO SO very much when you leave to Australia, but all the more reason to plan to come and visit you!

May God continue to Bless you Shaz,

stay the amazing, courageous, caring friend you are

All our love and more

Mark, Samm, Deqlan and Logan

Reminder CANSA Shavethon

Hello All


Deqlan is doing great! He continues to have loads of energy and is eating really well most of the time - he has learnt to distinguish the box of his favorite biscuits out of all the other boxes in Nannas cupboard.. He can now open the cupboard himself, find his beloved box of Chockits and brings to Nanna or Mama to open for him - HE LOVES THESE!


Another treat Deqlan seems to be enjoying is tissue paper! I dont know what the appeal is but we literally have to take it away and hide it so Deqlan doesnt try to eat it!


I found myself shopping for bigger clothes for our soldier as he continues to put on weight , which we are so thrilled about, and as he continues to grow taller! Deqlan is now into the 18 - 24 Months range of clothes - i cant believe how big our baby has grown!



Just a little reminder to all of you with us here in South Africa about the CANSA Shavethon tommorow - i believe that the event is taking place at 20 major shopping centres around the country. Please go ahead show your support by donating R50 to have your head shaved our spray painted and please remember to send us some pics to put on the blog - you can email to be at samt.etravel@galileosa.co.za




Also recieved this link for the latest CURE childhood cancer video:


We wanted to share the new video that CURE Childhood Cancer produced. Wehope it will bring much needed funds and awareness to neuroblastomaresearch. Please feel free to share.http://www.youtube.com/watch?v=v4ObDf8srh8



We need to do everything in our power to create awareness & to inspire funding for more research and most importantly a cure for neuroblastoma. Please continue to spread the word, donate to worthy projects and do what ever you can to promote funding to find a cure for nb.

Hope you all have a great weekend, let us know how you are and please continue to keep Deqlan in your prayers. Please also pray especially hard for Katie, Austin , Tyler and all the other warriors fighting nb and other cancers.

God Bless and all our love
Mark, Samm & Deqlan

WE CAN DO ALL THINGS THROUGH CHRIST THAT STRENGTHENS US

Happy Birthday Theresa

Dear T

We hope you have a fantastic Birthday and many many more!
Stay the very special and caring person you are and great friend to!

Hope you are spoilt rotten and enjoy every minute of today

Thank you for always being there for us

and for all your love and support for Deqlan

God Bless and lots of love

Mark,Samm, Deqlan and Logan

Happy Valetines Day

For God so loV ed the world,
That He gA ve
his onL y
BegottE n
SoN
T hat whosoever
Believeth I n Him
Should N ot perish,
But have E verlasting life."John 3:16

Enjoy the day and tell all your loved ones how much you love and treasure them , not only today, BUT EVERY DAY!

God Bless and lots of love and Blessings
Mark, Samm, Deqlan and Logan

Our boys!

DEQLAN AT +-4 WEEKS

KEATON AT 4 WEEKS - HAPPY 4 WEEKS TODAY!

Update on Austin

Thank you for the outpouring of thoughts and prayers. After a very shakey night Austin is doing better. Fortunately the hospital was prepared and had the all antibiotics going quickly. If not for that we are not sure he would have made it through the night. We spent the night in the PICU where his blood pressure finally stablized and his temperature returned to normal. He ended up receiving so much fluid that he is puffy. No source or location of the infection has been identified yet. After being minimally responsive all day and night he woke up this morning and the first thing he asked for was his colored Sharpe markers and clipboard so I could work on his homework. He is still not feeling well. He has had hints of a smile here and there for visitors but he is really not able to muster much. He should be transferred out to the regular floor later today or tomorrow. Hopefully we can get this infection under control so we can get on with fighting cancer.

We are home!

Hello Deqlans army

We are just back from the hospital with great,no, make that fantastic news!

The doctor cant see anything strange on the ultrasounds, all looks clear in the abodomen and pelvis area, thank You Dear Lord Jesus!

Deqlan did not like having the sonar done one little bit, even though its the easier of all the scans to have done. He just didnt like being held still , but eventually did co operate enough for the doc to get the pics she needed.

We saw alot of the familar faces from the x ray department, that have been on this journey with us since May 2007 - it was wonderful to see them and they were all so thrilled at how well Deqlan looks and how much energy he has ! They where also so encouraging saying all will be fine with todays scans, it always makes me feel better! Deqlan ran around the waiting room and even bumped a ladies water off the table and had everyone laughing

We then walked down to the oncology centre for the blood and urine test - we were a little worried at Deqlans reaction as it has been 4 months since we had any blood drawn from his port - but Deqlan was a super star, a real soldier! With his ghost pops in one hand and his Cedarmont Kids bible dvd playing and Mama and Dada standing each side, he let the sister clean the area and put the needle in with not a boo or ba! Nanna waited outside and expected to hear our soldier cry as he doesnt like this part very much, but sister opened to the door to a smiling Nanna happy that Deqlan was not stressed out ! We waited a while to collect enough urine for the vma/hma tests and off we were. So it went very very well, Deqlan you are such a soldier my boy, we are SO proud of you!

Our appointment with Dr De Jager is 26 Feb at 0900 to discuss scans , urine and blood tests and plans forward. Please continue to pray that these tests also indicate Deqlan to be totally NED forever!

We where very, very sadened today to hear that two warriors had past away in the last 2 weeks - JP, 16 years old and Koketso, our special friend who battled lymphoma, 4 years old . We are so heart sore to hear this and pray for comfort and guidance for their families. What wonderful, strong, courageous boys you are! We will never ever forget you.

Its Dr De Jagers birthday today! Happy Birthday Dr De Jager - continue working your healing abilities on our children, and continue to let God guard and light your path in helping all those you do. Thank you for all you continue to do for our Deqlan.

Thank you for all your prayers, messages, emails and calls for Deqlan - please continue to pray for Deqlan and all his friends fighting neuroblastoma and other cancers.

Have a lovely day , God Bless and thanks to you all for continuing to be there for us
All our love
Mark, Samm, Deqlan

FOR I KNOW THE PLANS I HAVE FOR YOU , DECLARES THE LORD, PLANS TO PROSPER YOU AND NOT TO HARM YOU, PLANS TO GIVE YOU HOPE AND A FUTURE