Its wonderful to be home! We arrived at home Saturday round lunch time, and it was all smiles as Deqlan woke up to hear and see his beloved doggies Shelby and Stuffy - he immidiately wanted to jump out my arms to get to them to love and play with them!
He also loved the sight of his playroom as i opened the door to put him down to crawl! being in hospital limits crawling and pulling himself up on things as we have to be so careful with the drip in the porto cath - so when he gets home we try and let him spend as much time on the floor as he wants
It was wonderful to go to church last night and report to everyone on the great results of the scans showing significent decrease in primary tumor and the mass in the eye gone!! Everyone is elated and shall continue to pray for our little soldier!
We spent most of the day resting and cleaning and de germing everything ( a weekly process to ensure we take most of the germs and bugs we may have picked up from the hospital away)
Seems like i have a little bit of a blocked nose again and Deqlan slight cough so hopefully will pass as the weather gets warmer
Mark went to see Logan today with Granny and we hear she is getting so big and doing well at school - we really miss her, i cant wait to see her again - Im sure she feels the same about seeing Deqlan, they just love each other so much and connected from the first day they met!
Looking forward to a week in our normal routine again, and with no neupogen injections this time ! Yay! But we will definitely need these after our next round of Carboplatin as this really hits the bone marrow and we got to guard Deqlans immune system even more then we have been
Our friend Koketso was in hospital with us, but not for his chemo, he has no neutrophils, no immune system and picked up a bug in his blood, so he is battling to get well at the moment - please say a special prayer for him to that he gets better asap!
Please also pray for our friends Keira and Charli as they have follow up scans on 1 August - pray for fantstic results for them to
Have a lovely week thanks again for all the prayers , we so appreciate them
All our Love
Mark, Samm & Deqlan
Sunday, July 29, 2007
Friday, July 27, 2007
the restults are in......
...the results are in ...COMPARED WITH THE PREVIOUS STUDY PERFORMED ON 25/05/2007, THE TUMOR HAS SIGNIFICANTLY DECREASED IN SIZE!!!!!!!!!!!!! PRAISE OUR HEAVENLY FAITHER ALL THE GLORY TO HIM - THANK YOU OUR LORD AND SAVIOR
I AM ELATED, I AM ON TOP OF THE WORLD, I AM SO GRATEFUL - OUR LORD CONTINUES TO HEAL DEQLAN - I FEEL LIKE SINGING AND SHOUTING AT THE TOP OF MY VOICE - REJOICE IN THE LORD ALWAYS AND AGAIN I SAY REJOICE
I AM SO SO SO SO PROUD OF MY STRONG SOLDIER - YOU ARE AMAZING MY BOY, YOU ARE MY HERO, MY INSPIRATION MY EVERYTHING
Dr De Jager has just given us this FATASTIC NEWS! The scans definitely show a decrease in the main tumor on the adrenal gland ! There is no soft tissue mass lesions in the left orbit!!!! This means that there is no more cancer present in the bone of the eye socket !!!! Praise Our Lord!!!! I can not explain my elation to you all ! Deqlans eye lid still appears swolen and the eye is not completely back into its normal position but this will improve as the bone remoulds and reforms as it regains its original structure. There is no more mention of lesions in the sinus ( which there were on the last report) No other lesions or mases anywhere else in the head or abdomen!!!!! Unfortunately this scan was not able to give us any more clues on the cancer infiltration that was orginally found in the bones, we will have to wait for end of the chemo rounds for another MIBG scan to confirm. But Dr De Jager says that we can only deduce that there is a grat improvement there to , due to the eye mass disapearing and the main tumor decreasing!!!!!!
The main tumor is around blood vessels though so now we ask for additional prayers that the chemo continues to shrink the tumor so much that it disapears from the blood vessels . Their is also a possibility that the remainder of the tumor could be dead by the time we have surgery and therefore we would just need to keep a very close eye on it. If they could not remove the entire tumor during surgery we would then look at the option of radiation after the surgery - this will only be confirmed / thought about after the sugery
So plan is continue with the further 6 rounds of chemo ( only 3 more hospital stays, the last 3 are day visits!!!!) When Deqlan hits 1 year or 12kg ( we far from that at the moment) the dose will increase by +-25% - we expect the surgery round the end of October - So please Dear Lord - Deqlan can be in top form for his delayed 1st Birthday party, Christmas and the arrival of his cousin in Feb!!! Hooray!
Thank you all for your continued support, love and prayers - we have the best army be could ever hope for with us with Our Lord leading the way! AMEN!!!!
Deqlan continues to be happy and full of smiles and even more active each day - he just wants to go - run and walk and jump and he even tried to swing from the oxygen pipe above his bed yesterday - he makes me laugh! The best medicine in the world for my soul!
Hope to post some new pictures soon!
Please continue to pray for our gorgeous boy and for all his friends that need your prayers just as much!
God Bless and all my love and thanks in the world
SAMM
I AM ELATED, I AM ON TOP OF THE WORLD, I AM SO GRATEFUL - OUR LORD CONTINUES TO HEAL DEQLAN - I FEEL LIKE SINGING AND SHOUTING AT THE TOP OF MY VOICE - REJOICE IN THE LORD ALWAYS AND AGAIN I SAY REJOICE
I AM SO SO SO SO PROUD OF MY STRONG SOLDIER - YOU ARE AMAZING MY BOY, YOU ARE MY HERO, MY INSPIRATION MY EVERYTHING
Dr De Jager has just given us this FATASTIC NEWS! The scans definitely show a decrease in the main tumor on the adrenal gland ! There is no soft tissue mass lesions in the left orbit!!!! This means that there is no more cancer present in the bone of the eye socket !!!! Praise Our Lord!!!! I can not explain my elation to you all ! Deqlans eye lid still appears swolen and the eye is not completely back into its normal position but this will improve as the bone remoulds and reforms as it regains its original structure. There is no more mention of lesions in the sinus ( which there were on the last report) No other lesions or mases anywhere else in the head or abdomen!!!!! Unfortunately this scan was not able to give us any more clues on the cancer infiltration that was orginally found in the bones, we will have to wait for end of the chemo rounds for another MIBG scan to confirm. But Dr De Jager says that we can only deduce that there is a grat improvement there to , due to the eye mass disapearing and the main tumor decreasing!!!!!!
The main tumor is around blood vessels though so now we ask for additional prayers that the chemo continues to shrink the tumor so much that it disapears from the blood vessels . Their is also a possibility that the remainder of the tumor could be dead by the time we have surgery and therefore we would just need to keep a very close eye on it. If they could not remove the entire tumor during surgery we would then look at the option of radiation after the surgery - this will only be confirmed / thought about after the sugery
So plan is continue with the further 6 rounds of chemo ( only 3 more hospital stays, the last 3 are day visits!!!!) When Deqlan hits 1 year or 12kg ( we far from that at the moment) the dose will increase by +-25% - we expect the surgery round the end of October - So please Dear Lord - Deqlan can be in top form for his delayed 1st Birthday party, Christmas and the arrival of his cousin in Feb!!! Hooray!
Thank you all for your continued support, love and prayers - we have the best army be could ever hope for with us with Our Lord leading the way! AMEN!!!!
Deqlan continues to be happy and full of smiles and even more active each day - he just wants to go - run and walk and jump and he even tried to swing from the oxygen pipe above his bed yesterday - he makes me laugh! The best medicine in the world for my soul!
Hope to post some new pictures soon!
Please continue to pray for our gorgeous boy and for all his friends that need your prayers just as much!
God Bless and all my love and thanks in the world
SAMM
Thursday, July 26, 2007
Round 4
We arrived here this morning at 0830 and had a bit of a wait as DR was a very busy man this morning as he always is- Deqlan was so good he didnt even moan about not eating for 6 hours ( we had to keep him nil per mouth for the scan) He was not very happy about putting the porto cath needle in or Doctor doing his usual check ups on Deqlan and cried the whole way through, but luckily Dada was here this morning to try and cheer his boy up
We got the good news that Deqlans blood count was fine to go ahead with the 4th round - the counts are low, but still within the normal limits - his blood level is 9.9 so no need for blood transfusion this round either - yipee!
We waited a llooonnnggg time for them to tell us to go to xrays and Deqlan started to moan as he was now starving ! When the Sister Evans said, of course he can eat/drink something! So we where a little annoyed that we starved poor Deqlan for nothing!
Anyway, we got to the ct scan and he had to drink some awful liqorice smelling iodine to highlight the organs for the scan - needless to say he didnt even finish half - they had to sedate him a little, so that he would lie still for the scans
I had absolute visions of horror whilst standing waiting for the scan to start - it took me back to 25 May when Mom and I and Deqlan went through the MRI scan - but luckily this one wasnt even 5 minutes and no loud noises that could be engraved in my brain like the MRI did
Deqlan sleep for another 2 hours and was very happy to have a normal bottle of milk when he woke up- he had a great afternoon with loads of energy and just wants to climb on everything , walk, run, you name it !
We waited very very very patiently the whole afternoon for the results, and unfortunately nothing had arrived by the time Dr De Jager had to leave! We had to remind ourselves to be patient,its In THE LORDS TIME - NOT OURS!
We know the results are in and we eagerly await to see Dr De Jager tommorow morning - promise to update you all as soon as we have spoken to him
I cant thank you all enough for your continued calls, sms, emails, posts and above all YOUR PRAYERS - THEY ARE WORKING - OUR LORD IS HEALING OUR DEQLAN - BY JESUS STRIPES DEQLAN IS HEALED ! PRAISE OUR HEAVENLY FATHER!
Hope you all sleep very well and cant wait to share the great news with you all tommorow!
Lots of love, Gods richest Blessings on you all
Samm a.k.a Mama!
We got the good news that Deqlans blood count was fine to go ahead with the 4th round - the counts are low, but still within the normal limits - his blood level is 9.9 so no need for blood transfusion this round either - yipee!
We waited a llooonnnggg time for them to tell us to go to xrays and Deqlan started to moan as he was now starving ! When the Sister Evans said, of course he can eat/drink something! So we where a little annoyed that we starved poor Deqlan for nothing!
Anyway, we got to the ct scan and he had to drink some awful liqorice smelling iodine to highlight the organs for the scan - needless to say he didnt even finish half - they had to sedate him a little, so that he would lie still for the scans
I had absolute visions of horror whilst standing waiting for the scan to start - it took me back to 25 May when Mom and I and Deqlan went through the MRI scan - but luckily this one wasnt even 5 minutes and no loud noises that could be engraved in my brain like the MRI did
Deqlan sleep for another 2 hours and was very happy to have a normal bottle of milk when he woke up- he had a great afternoon with loads of energy and just wants to climb on everything , walk, run, you name it !
We waited very very very patiently the whole afternoon for the results, and unfortunately nothing had arrived by the time Dr De Jager had to leave! We had to remind ourselves to be patient,its In THE LORDS TIME - NOT OURS!
We know the results are in and we eagerly await to see Dr De Jager tommorow morning - promise to update you all as soon as we have spoken to him
I cant thank you all enough for your continued calls, sms, emails, posts and above all YOUR PRAYERS - THEY ARE WORKING - OUR LORD IS HEALING OUR DEQLAN - BY JESUS STRIPES DEQLAN IS HEALED ! PRAISE OUR HEAVENLY FATHER!
Hope you all sleep very well and cant wait to share the great news with you all tommorow!
Lots of love, Gods richest Blessings on you all
Samm a.k.a Mama!
Wednesday, July 25, 2007
Wednesday, the 25th of July 2007
Hello All
Today marks exactly 2 months ago that we heard that Deqlan had stage 4S Neuroblastoma - we actually sat down and took count of all Deqlan has been through in the last 2 months
- visit to peadiatrician who diagnosed conjunctivitis!
- visit to eye specialist who suggested we wait 1 month before re looking your eye - thank Our Lord we did not wait that month
- mr scan - had to sedate him twice in order to do a second round of scans
- mibg scan where they injected radioactive material into his little body
- surgery to insert porto cath, laporoscopy that didnt work, laporotomy to get biopsy of tumor on adrenal gland, bone marrow aspiration
- surgery to fix a blockage caused by laporoscopy!!
- blood transfusion
- surgery to fix hernea created by trying to fix laporoscopy!!!!
- 3 rounds of chemo
- countless drawing of blood, drips inserted, urine and stool tests
- had istotech ( liquid food through a drip/porto cath) as he couldnt eat and lost a lot of weight
...and today...he rolled off the bed and has two little carpet burns and his little forehead to prove it!!!!!!!!
I was devastated- i was trying to erect the camping cot to prevent him for getting into danger and murphies while i was trying to prevent something happening this happened ! Thank Our Lord he is fine -I dont know what I was thinking! Silly and Tired Mom.... A lot of people have assured me this has happened to their kids before but I still feel awful about it!
I am AMAZED at all my little soldier has gone through, and he is still laughing and smiling and continues to be the light of my life - i learn something every day from him - his fighting spirit blows me away - he is already my hero at 10 months old, and will always be, God definitely chose Deqlan for a reason -he is the bravest, strongest, most courageous person i know - I love you with all my heart my Darling Boy - I knew I loved you before I met you - I knew that you where something extraordinary the day you where placed into my arms, 11 Sep 2006.You have already gone through more then our whole family put together, and more - Never ever ever forget how much I love and treasure you - I promise to take the best possible care of you ( never to roll off the bed again!!! ha ha ha) I promise to continue to teach you about Our Lord and Father God and I promise you we are going to get you better because our Faith is so strong and I believe with all my heart By Jesus Stripes YOU WILL BE HEALED!!!
i CANT WAIT TO SEE THE SCAN TOMMOROW WITH A GREAT RESULT!
Please say an extra special prayer for us tonight that Deqlans blood counts are good enough for us to go ahead with the 4th round of chemo, that he sails through as he has done the previous 3 rounds and that the scan shows fantastic progress.Please pray that Dr Dejager makes the correct decisions on where to from here and the correct doses of chemo to give to continue on our road to total and permanent health.
Sleep tight, lets stand together army , Deqlan can fight any battle with the Lord and with you all next to him
God Bless, All our love, till tommorow
Samm
Today marks exactly 2 months ago that we heard that Deqlan had stage 4S Neuroblastoma - we actually sat down and took count of all Deqlan has been through in the last 2 months
- visit to peadiatrician who diagnosed conjunctivitis!
- visit to eye specialist who suggested we wait 1 month before re looking your eye - thank Our Lord we did not wait that month
- mr scan - had to sedate him twice in order to do a second round of scans
- mibg scan where they injected radioactive material into his little body
- surgery to insert porto cath, laporoscopy that didnt work, laporotomy to get biopsy of tumor on adrenal gland, bone marrow aspiration
- surgery to fix a blockage caused by laporoscopy!!
- blood transfusion
- surgery to fix hernea created by trying to fix laporoscopy!!!!
- 3 rounds of chemo
- countless drawing of blood, drips inserted, urine and stool tests
- had istotech ( liquid food through a drip/porto cath) as he couldnt eat and lost a lot of weight
...and today...he rolled off the bed and has two little carpet burns and his little forehead to prove it!!!!!!!!
I was devastated- i was trying to erect the camping cot to prevent him for getting into danger and murphies while i was trying to prevent something happening this happened ! Thank Our Lord he is fine -I dont know what I was thinking! Silly and Tired Mom.... A lot of people have assured me this has happened to their kids before but I still feel awful about it!
I am AMAZED at all my little soldier has gone through, and he is still laughing and smiling and continues to be the light of my life - i learn something every day from him - his fighting spirit blows me away - he is already my hero at 10 months old, and will always be, God definitely chose Deqlan for a reason -he is the bravest, strongest, most courageous person i know - I love you with all my heart my Darling Boy - I knew I loved you before I met you - I knew that you where something extraordinary the day you where placed into my arms, 11 Sep 2006.You have already gone through more then our whole family put together, and more - Never ever ever forget how much I love and treasure you - I promise to take the best possible care of you ( never to roll off the bed again!!! ha ha ha) I promise to continue to teach you about Our Lord and Father God and I promise you we are going to get you better because our Faith is so strong and I believe with all my heart By Jesus Stripes YOU WILL BE HEALED!!!
i CANT WAIT TO SEE THE SCAN TOMMOROW WITH A GREAT RESULT!
Please say an extra special prayer for us tonight that Deqlans blood counts are good enough for us to go ahead with the 4th round of chemo, that he sails through as he has done the previous 3 rounds and that the scan shows fantastic progress.Please pray that Dr Dejager makes the correct decisions on where to from here and the correct doses of chemo to give to continue on our road to total and permanent health.
Sleep tight, lets stand together army , Deqlan can fight any battle with the Lord and with you all next to him
God Bless, All our love, till tommorow
Samm
Monday, July 23, 2007
Monday, the 22nd July 2007
We had a great weekend!
Deqlan continues to make us laugh and smile and beam with joy - his only word ( that we can make out ) at the moment is mamma - but the way he is saying it changes now - we know when he wants something and when he just wants to chat - its so cute to watch - I love him more and more each minute of the day!
Deqlan " attended" his first Birthday party for his friend Peyton who turns 1 tommorow. We went to deliver the gift and Deqlan slept in the car - we unfortunatley couldnt take Deqlan into the party as his immune system could be compromised and we have been told to avoid contact with little ones. So we will be dropping off gifts for all of Deqlans little friends so they know we are there in spirit! We recieved a lovely party pack full of Barney goodies and a purple balloon which Deqlan thoroughly enjoyed! He LOVES balloons! We are going to have 2 Birthday Parties for Deqlan - 1 now in Sep and another when he is healed and better so we can have all the kids over and its going to be amazing - cant wait to see Deqlans face with all I have planned!!!
We recieved another gift today from Denise, the most stunning cd called And Jesus Healed The All, Healing Praise for Your Children - how beautiful and special - Thank you again Denise, we love it and I cant wait to continue listening to it tommorow on the way to Nanna! This cd is unbelievably specail and continues to praise my favourite verse at the moment, BY JESUS STRIPES, DEQLAN IS HEALED!
We also recieved the most cutest pair of shoes i ordered a few weeks ago - Deqlan finds ways to get out of his shoes and socks - he loves being bare foot and loves not having clothes on, but in winter i have to insist he has something on - so hopefully these shoes stay on they are really stunning and im sure very comfy to!
We where so happy to be able to distract Deqlan with his very lamp today, while Nanna gave the neupogen injection, that he didnt even make a sound - i hate hearing my precious cry after these injections , although its not to bad, we think the alcohol swab to wipe the area already tells his mind whats coming! tommorow is the last 1 for this round, thank goodness!
Please continue to pray for our beautiful boy and extra special prayers for Thursday, that Deqlans blood count is great so we can go ahead with round 4 and that we see fantastic improvement on the scans they are going to do - promise to keep you all up to date! Please continue to pray for all of Deqlans friends that need all our prayers and support to!
Have a lovely week ahead and thanks to all of you who continue to send your messages,calls, posts, emails through and above all your prayers - what a wonderful army we have fighting this with Deqlan
All our love
Mark, Samm & Deqlan
Deqlan continues to make us laugh and smile and beam with joy - his only word ( that we can make out ) at the moment is mamma - but the way he is saying it changes now - we know when he wants something and when he just wants to chat - its so cute to watch - I love him more and more each minute of the day!
Deqlan " attended" his first Birthday party for his friend Peyton who turns 1 tommorow. We went to deliver the gift and Deqlan slept in the car - we unfortunatley couldnt take Deqlan into the party as his immune system could be compromised and we have been told to avoid contact with little ones. So we will be dropping off gifts for all of Deqlans little friends so they know we are there in spirit! We recieved a lovely party pack full of Barney goodies and a purple balloon which Deqlan thoroughly enjoyed! He LOVES balloons! We are going to have 2 Birthday Parties for Deqlan - 1 now in Sep and another when he is healed and better so we can have all the kids over and its going to be amazing - cant wait to see Deqlans face with all I have planned!!!
We recieved another gift today from Denise, the most stunning cd called And Jesus Healed The All, Healing Praise for Your Children - how beautiful and special - Thank you again Denise, we love it and I cant wait to continue listening to it tommorow on the way to Nanna! This cd is unbelievably specail and continues to praise my favourite verse at the moment, BY JESUS STRIPES, DEQLAN IS HEALED!
We also recieved the most cutest pair of shoes i ordered a few weeks ago - Deqlan finds ways to get out of his shoes and socks - he loves being bare foot and loves not having clothes on, but in winter i have to insist he has something on - so hopefully these shoes stay on they are really stunning and im sure very comfy to!
We where so happy to be able to distract Deqlan with his very lamp today, while Nanna gave the neupogen injection, that he didnt even make a sound - i hate hearing my precious cry after these injections , although its not to bad, we think the alcohol swab to wipe the area already tells his mind whats coming! tommorow is the last 1 for this round, thank goodness!
Please continue to pray for our beautiful boy and extra special prayers for Thursday, that Deqlans blood count is great so we can go ahead with round 4 and that we see fantastic improvement on the scans they are going to do - promise to keep you all up to date! Please continue to pray for all of Deqlans friends that need all our prayers and support to!
Have a lovely week ahead and thanks to all of you who continue to send your messages,calls, posts, emails through and above all your prayers - what a wonderful army we have fighting this with Deqlan
All our love
Mark, Samm & Deqlan
Thursday, July 19, 2007
UPDATE ON MOMMY SAMM
Mommy Samm was feeling and looking a little better today, but her pallor reflected her fatigue. Being the outstanding Mommy she is, she swiftly dealt with the pending upper respiratory tract infection yesterday by seeking urgent medical attention - an imperative action to limit any risk of cross-infection for Deqlan. Now Mommy, (just like Meggie, Grandpa and Nanna always do) had to give our Deqlan kisses on his head today. The beautiful baby smell of his hair is positively addictive and when one holds him, it is almost irrestible to NOT kiss him.
Today, Samm found out that she has the same blood group as Deqlan (A positive) and was immediately considering donating blood for the transfusion we are expecting Deqlan to need during his next chemo session. A mother's sacrifice knows no boundaries, despite Samm herself having extremely low blood pressure with a history of anaemia. Such is the love of this mother for her son. Mommy Samm is taking her medicine (and with Nanna as the proverbial "watchdog") and is doing "all the right things" to get well as quickly as possible. Samm is our "miracle Mom" and her commitment as a wife and mother is also demonstrated in her able management of the busy travel agency. Please say an extra special prayer for her quick and full recovery and that God may richly bless her so that she continues to be the best possible wife to Mark, Mother to Deqlan and a blessing to others.
Sacred Heart of Jesus, we ask that you embrace our treasured Samm and fill her with Your love, strength, peace, courage, faith and hope to effect her recovery. And Lord, always let her know how much she is loved by us.
Posted by Nanna (aka Mom to Samm)
Today, Samm found out that she has the same blood group as Deqlan (A positive) and was immediately considering donating blood for the transfusion we are expecting Deqlan to need during his next chemo session. A mother's sacrifice knows no boundaries, despite Samm herself having extremely low blood pressure with a history of anaemia. Such is the love of this mother for her son. Mommy Samm is taking her medicine (and with Nanna as the proverbial "watchdog") and is doing "all the right things" to get well as quickly as possible. Samm is our "miracle Mom" and her commitment as a wife and mother is also demonstrated in her able management of the busy travel agency. Please say an extra special prayer for her quick and full recovery and that God may richly bless her so that she continues to be the best possible wife to Mark, Mother to Deqlan and a blessing to others.
Sacred Heart of Jesus, we ask that you embrace our treasured Samm and fill her with Your love, strength, peace, courage, faith and hope to effect her recovery. And Lord, always let her know how much she is loved by us.
Posted by Nanna (aka Mom to Samm)
Thursday, 19th July 2007 - A SUNBEAM DAY
Deqlan had a good day, with the only real problems being his lack of appetite, especially for solids and his "fighting sleep". He was restless rather than active, but still had a fun time playing with his musical instruments, his train set, garden inspections of the flowers and birdlife, and watching his favourite DVD, Mae-Mae. Nanna put his feet into the very soft sand of the Zen garden and he appeared to love it as he started doing what can only be called a "jive" in order to disperse the sand. Nanna has a "hunch" that Deqlan, in time, will confer the title of "favourite place in Nanna's home" on the Zen garden. We watched "The Lion King" DVD together, but Mommy and Nanna certainly enjoyed it more than Deqlan. Just watch this space in the future though, as we are sure Deqlan will come to love the story and the music as much as we do.
We have a beautiful DVD of Bible Songs sung by children, ( thank you so much again Denise) and to lullaby him to sleep today, Nanna softly sang the tune "Jesus wants me for a sunbeam". How perfectly appropriate are these words as Deqlan is most certainly the most beautiful sunbeam in our lives, and is most certainly the brightest sunbeam for Jesus. Deqlan, at the tender age of 10 months has been the proverbial "sunbeam" in many persons' lives, from bringing some who "did not believe" to their knees and into church again to teaching and showing us how suffering - during his 3 surgeries - has to be bravely endured.
You may remember the words to this very special song:
"Jesus wants me for a sunbeam
To shine on Him each day,
To try in everyway to please Him
At home, at work, at play,
A sunbeam, a sunbeam, Jesus wants me for sunbeam
I'll be a sunbeam for Him"
His courage during his chemotherapy sessions is a most humbling experience with Deqlan having smiles for everyone (without epaulettes on their shoulders) and so radiates as a sunbeam for all the other patients in the ward as well !
We are so blessed to have our precious Deqlan in our lives. His smiles are a "tonic" and now that he can boast evidence of 4 top teeth to match his bottom two, he is as cute as a button whenever he smiles. His is now able to "carve" his way into a raw carrot, biltong, rusks and shortbread. When his appetite returns, we are sure we will see some changes as regards his newly-chosen menu. Every single day we have to share with him adds to our "beautiful book of memories". These blessings give us all the strength, faith and hope to face "the struggle" with an unformiddable passion to live the Word of God in our daily lives, and accept His will in all things.
Deqlan's daily Neupogen injections have commenced again (a six day course) and Nanna gives these with great love, as we all know how important they are to regenerate his bone marrow after its suppression due to the chemo. We are hopeful that round 4 of chemotherapy will be able to commence as planned next Thursday. 26th July, during which the all-important first reassessment will be done in order to ascertain the status of the neuroblastoma as a response to chemotherapy. We ask that your prayers continue and thank you all for your concern, support, and gifts of strength, love and encouragement. These prayers act as "food for our souls" and we are infused with their power and their hope each time you lift Deqlan and his family up in prayers.
Visiting the garden today, Deqlan and Nanna were very surprised to see some green leaves and buds already on the rosebushes. After the harsh winter, it would seem as if they cannot wait to flower - these flowers seem to be in a hurry to bloom, unlike us, who MUST be patient in the waiting - and during Deqlans healing - as it will all be done in HIS time and in HIS way and on HIS terms.
Mommy and Daddy's unconditional courage, determination, faith and hope continues to humble us all; they are an inspiration to our family and we love them dearly.
Posted by Nanna Bev
We have a beautiful DVD of Bible Songs sung by children, ( thank you so much again Denise) and to lullaby him to sleep today, Nanna softly sang the tune "Jesus wants me for a sunbeam". How perfectly appropriate are these words as Deqlan is most certainly the most beautiful sunbeam in our lives, and is most certainly the brightest sunbeam for Jesus. Deqlan, at the tender age of 10 months has been the proverbial "sunbeam" in many persons' lives, from bringing some who "did not believe" to their knees and into church again to teaching and showing us how suffering - during his 3 surgeries - has to be bravely endured.
You may remember the words to this very special song:
"Jesus wants me for a sunbeam
To shine on Him each day,
To try in everyway to please Him
At home, at work, at play,
A sunbeam, a sunbeam, Jesus wants me for sunbeam
I'll be a sunbeam for Him"
His courage during his chemotherapy sessions is a most humbling experience with Deqlan having smiles for everyone (without epaulettes on their shoulders) and so radiates as a sunbeam for all the other patients in the ward as well !
We are so blessed to have our precious Deqlan in our lives. His smiles are a "tonic" and now that he can boast evidence of 4 top teeth to match his bottom two, he is as cute as a button whenever he smiles. His is now able to "carve" his way into a raw carrot, biltong, rusks and shortbread. When his appetite returns, we are sure we will see some changes as regards his newly-chosen menu. Every single day we have to share with him adds to our "beautiful book of memories". These blessings give us all the strength, faith and hope to face "the struggle" with an unformiddable passion to live the Word of God in our daily lives, and accept His will in all things.
Deqlan's daily Neupogen injections have commenced again (a six day course) and Nanna gives these with great love, as we all know how important they are to regenerate his bone marrow after its suppression due to the chemo. We are hopeful that round 4 of chemotherapy will be able to commence as planned next Thursday. 26th July, during which the all-important first reassessment will be done in order to ascertain the status of the neuroblastoma as a response to chemotherapy. We ask that your prayers continue and thank you all for your concern, support, and gifts of strength, love and encouragement. These prayers act as "food for our souls" and we are infused with their power and their hope each time you lift Deqlan and his family up in prayers.
Visiting the garden today, Deqlan and Nanna were very surprised to see some green leaves and buds already on the rosebushes. After the harsh winter, it would seem as if they cannot wait to flower - these flowers seem to be in a hurry to bloom, unlike us, who MUST be patient in the waiting - and during Deqlans healing - as it will all be done in HIS time and in HIS way and on HIS terms.
Mommy and Daddy's unconditional courage, determination, faith and hope continues to humble us all; they are an inspiration to our family and we love them dearly.
Posted by Nanna Bev
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