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Thursday, June 12, 2008

Congress passes act!

HOT OFF THE PRESS:

FOR IMMEDIATE RELEASECureSearch Praises Passage of the "Caroline Pryce Walker Conquer Childhood Cancer Act" in U.S. House of Representatives Children with Cancer and their Families to Benefit from Landmark LegislationJune 12, 2008 (Bethesda, MD) - CureSearch National Childhood Cancer Foundation salutes the United States House of Representatives for passage of H.R. 1553, the "Caroline Pryce Walker Conquer Childhood Cancer Act," which promises to significantly increase federal investment into childhood cancer research.During markup of the legislation, the bill was renamed the Caroline Pryce Walker Conquer Childhood Cancer Act of 2008, in memory of Caroline Pryce Walker, daughter of Congresswoman Deborah Pryce (R-OH), who succumbed to neuroblastoma in 1999 at age nine. The bill authorizes $30 million annually over five years, providing funding for collaborative pediatric cancer clinical trials research, to create a population-based national childhood cancer database, and to further improve public awareness and communication regarding available treatments and research for children with cancer and their families."For far too long, children suffering from pediatric cancer have gotten short shrift on federal resources," said Pryce, original author of this groundbreaking legislation."The bill we passed today dramatically expands federal investment into childhood cancer research and education, and will make an historic difference in the lives of the more than 12,000 children who will be diagnosed with cancer each year. A nation with our resources, our scientists, our committed doctors and oncologists, and our inherent and insuppressible fighting spirit can and should do more to put an end to so much suffering."Congressman Chris Van Hollen (D-MD), one of the original co-sponsors of the Carolyn Walker Pryce Conquer Childhood Cancer Act, stated that conquering childhood cancer has transcended partisan politics, and addresses a critical national issue that is finally receiving the attention it deserves."I am pleased that the House passed this important legislation, which will bring us one step closer to eradicating pediatric cancer," said Van Hollen. "This bill will enhance and expand pediatric cancer research activities at the National Institutes of Health, establish a pediatric cancer registry, and increase informational and educational outreach efforts to patients and families affected by pediatric cancer. No child should have to experience and suffer the effects of cancer, and no parent should have to see their child suffer."CureSearch supports the life-saving research of the Children's Oncology Group, the world's premier cancer research collaborative. Treating 90% of children with cancer, the Children's Oncology Group includes more than 5,000 experts in childhood cancer research and treatment, located at more than 200 leading children's and university hospitals across North America. "The Caroline Pryce Walker Conquer Childhood Cancer Act allows for translation of the very best research discoveries into clinical evaluation and practice, in order to improve the cure rates for all children with cancer," noted Gregory Reaman, MD, Chair of the Children's Oncology Group. "Only research cures childhood cancer. On behalf of my colleagues in the Children's Oncology Group and the children with cancer and their families who are our partners in clinical research, we thank our Congressional leaders.""On behalf of CureSearch, we applaud the steadfast leadership of Representatives Chris Van Hollen and Deborah Pryce and their colleagues in the House who through the passage of this bill have made finding the cure for childhood cancer an urgent national priority," said Stacy Pagos Haller, Executive Director, CureSearch. Companion legislation in the United States Senate (S.911), sponsored by Senator Jack Reed (D-RI), cleared the Senate Health, Education, Labor and Pensions (HELP) Committee unanimously in November, 2007. The Senate version of the Conquer Childhood Cancer Act currently has 63 co-sponsors; a full Senate floor vote on the bill is expected this summer.

4 comments:

Nanna and Grandpa said...
This comment has been removed by the author.
Nanna and Grandpa said...

It is my prayer that this legislation is translated as quickly as possible into actual research, application to clinical practice, follow-up studies of all kinds so that A CURE is found. May the Holy Spirit fill the hearts and minds of all the oncologists and researchers to guide them, to apply all their knowledge, skills, experience and expertise, to lead them, inspire them and to give them confidence, hope, determination, strength of resolve, passion, dedication, and commitment to excellence. Sacred Heart of Jesus, let this legislation be the forerunner of that which SOON leads to MANY CANCER CURES, BUT ESPECIALLY THE CURE FOR NEUROBLASTOMA, FOR THE CURE TO BE THE ULTIMATE ONE TO COMPLETELY AND PERMANENTLY HEAL CHILDREN FROM THIS "BEASTLY CANCER" . AMEN.


Nanna Bev Bourne

Anonymous said...

Hallelujah!!! Thanks for sharing the good news with us Samm!

Blessings,
Karen :-)

Anonymous said...

Good words.

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